NAPE, Inc. - About

Thank you for visiting the National Association for PXE website. NAPE is headquartered in St. Louis, Missouri. Everyone with PXE and those with an interest in PXE are encouraged to join this organization. A quarterly newsletter is sent to all members. The newsletter contains up-to-date information on all aspects of PXE plus a question and answer section to address specific questions and problems posed by readers. See below to learn Who is NAPE?

NAPE's Medical and Scientific Advisors

Kenneth H. Neldner, MD
Professor, Dermatology, Retired
Texas Tech University, HSC
Lubbock, Texas

Kattesh V. Katti, PhD, FRSC
Radiopharmaceutical Sciences Institute
University of Missouri
Columbia, MO

Wayne Fuchs, MD
Diseases of the Retina and Vitreous
New York, New York
Denver, Colorado

Daniel Hohl, MD
Associate Professor
University of Lausanne
Dermatogenetic Laboratory of Cutaneous Biology
Lausanne, Switzerland

Berthold Struk, MD
Franz-Volhard Clinic for Cardiovascular Disease
Max-Delbruck Center for Molecular Medicine
Berlin, Germany

Mark Lebwohl, MD
Professor and Chair
Mt. Sinai Medical Center
Department of Dermatology
New York, New York

Klaus Lindpaintner, MD, MPH
VP & Head, Roche Genetics (Europe)
Pharmaceuticals Division
Basel, Switzerland

Franziska Ringpfeil, MD
Ringpfeil Advanced Dermatology
Philadelphia, Pennsylvania

Lawrence Yannuzzi, MD
Manhattan Eye, Ear & Throat Hospital
LuEsther T. Mertz Retinal Research
Manhattan, New York